Category: Tay Sachs

October 18, 2011

Tay-Sachs: a primer on the rare disease

Filed under: Tay Sachs - 18 Oct 2011

By Elizabeth Flock In a moving piece in the the New York Times's Sunday Review this week, author Emily Rapp describes what it is like to have a son with Tay-Sachs, a rare and untreatable genetic disorder that means he …

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October 17, 2011

Tay-Sachs: a primer on the rare disease

Filed under: Tay Sachs - 17 Oct 2011

Emily Rapp's son Ronan was born with Tay-Sachs disease, for which there is no treatment and no cure. He is not likely to see his third birthday. She writes in the New York Times Sunday Review her Notes From a …

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Notes From A Dragon Mom

Filed under: Tay Sachs - 17 Oct 2011

My family is statistically much less likely than my African American colleagues to need treatment for Sickle Cell Anemia but more likely to have to deal with Tay Sachs. The list could go on and on. The bottom line is …

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